Long awaited updates

Wow, it has been almost a month since I last updated. Dawson is doing great though. We had a nasty tummy bug rip through the house in the weeks leading up to Christmas. It was bad, we ended up missing his Neuro Metabolic appointment in Toronto (we waited 9 months for it too), Grrr what a piss off. They re booked us in June. Can you believe that. Craziness. We did make it to his Urology appointment though, so we have some new meds he will be on for 6 months than he goes back in April for a few tests. He has been on these meds now for close to 2 months and holy moly is he ever peeing lots :) This is GREAT and we are hoping that all this pee is good lol. We went from 2 DAMP diapers a day to roughly 7 WET diapers a day. YAY (never thought I would be so excited for pee before lol).

We also had genetics this week. She ordered a few more tests to be sent to the USA (They do more in depth testing there). This appt was not to exciting and hopefully these tests will be fine just like the last batch he had. We will see them again in a year.

He is doing great in school and is now going until 1:30 (before Christmas he was only going until noon). Our plan is to up him slowly to a full day. We hope to have him full day by spring time. I am not sure how well his body will handle the full day since skipping his nap seems to up the pain he gets, but so far so good with him being there till 1:30. Over all he is doing great in all areas over the last few weeks:)

Now for some updates on the twins (who will be 8 in just a few weeks). Emma started the tummy bug in our house, after her night of the bug she started with a fever and localized pain in her side. I took her to the ER because I thought for sure she had appendicitis. After spending 4 days in the ER and her getting poked over and over we found out she has a bunch of swollen lymph nodes all through her belly. It has been rough, we are on week 7 of the fever and pain and still no real answers, she sees the family Dr again this week and if things are not looking any better she will be tested for Lymphoma. The thought of one of my kids having cancer scares the shit right out of me. Please keep her in your thoughts while we try to figure this out.

She also started a new school after the Christmas break. She is in a small class of 6 kids and 4 teachers, so far so good. It has only been a week and a half so not much to say about it other than she loves it and I will update about once the "newness" wears off lol.

Jenna had an Ortho appt today at children's, it went well and he gave us some great info on different stretches we can do with her to keep her "loose". He did say she was a bit tight on her right side (she always has been, this is part of her CP) but he feels at this point we can stay out of the braces :) We will do her new stretches and he will see her again in a year. He was explaining to Dave that now that she is older and the growth spurts are getting far apart but bigger, sometimes they can get "stuck" (as in very stiff) so this is why he would like to follow her. The falling and clumsiness comes with the CP and there is really nothing we can do about it, but that is ok because really she could be in a wheel chair or much worse. We will take the clumsiness any day:)

I think this is just about it for now, we have a few more appt's in the next week so I will update again soon and post some Christmas pics in a new post.