Emma's Neuro update

So we finally seen Neuro for her EEG results, the actual test was inconclusive (a 20 min test took us 2 hours to do, she is a fighter lol). So because she was VERY uncooperative that day her test was a mess and they could not be 100% sure as to what is going on with the "spells" she has been having. From our reports at home and the teachers reports at school he is pretty sure she has childhood absence epilepsy. I did some reading up on it tonight and I think it fits what she is doing to a tee. So where do we go from here? The plan is to do 2 more EEG'S (the next one being a sleep deprived one) and another one like she had in may will follow and MRI (set for Feb.). The MRI will be the tell all as to what may or may not be causing these issues. As for meds he wants to wait until the EEG's and MRI are done, I agree, if we don't need to pump her full of seizure meds at this time I am happy with that. We are hoping we will not need to treat at all (since these "spells" don't seem to be interfering with her daily life at this point) and we will cross our fingers that she will outgrow the seizures with time. Here is a good site with great info on what Childhood Absence Epilepsy is
http://www.epilepsy.com/epilepsy/epilepsy_childhoodabsence

As you can see from her picture above she is still happy as can be. She is loving school this year and her teacher reported a few weeks after school started that she is coming along great with her numbers:) We are still waiting on Genetics, hoping I can get a hold of them tomorrow to figure out what is going on.

A quick update on Dawson, he is doing GREAT (knock on wood), we got the bussing figured out so he started riding the bus last week. I really think it helps with the joint pain. He is in school full day this year and walking to and from plus being at school full day was killing him, since taking the bus we have had NO pain:) He does not have a 1 on 1 EA at this point but they do have an EA that is with him while outside and in gym, so far it has worked out great. Everything is slowly falling into place school wise and we have yet to here from the blood work Sick Kids did on him so we are taking that as no news is good news (they did CK levels and liver enzymes, if they were still high she was going to call us, they must be in NORMAL limits for the first time in 2 years). At least I hope so anyway.

I am also thinking about changing the name of this blog since Emma has just as many dr's appts as Dawson lately but have have not been able to think of a new name yet, so look for some changes soon!!!