frusterating day!!!!!!!!

Dawson's appt was at 9 am this morning with his neuro at children's hospital in London. I had 3 of them bathed by 8 am:) Clothed and hair done by 8:30 plus the other 3 out the door for school by 8:30 also. Quick grab the shoes and RUN out the door. Only 2 out of the 3 pairs we needed were no where to be found. Tear the house apart looking for the shoes and Dawson's new orange baby gap hat that he has slept with since we bought it on the weekend (the hat was with the shoes). 9am comes and goes (we were making such good time too). Usually we are early or on time for everything. Not today though. We got out the door at 5 after 9.

We were close to an hour late and had to wait 45 mins to see the Dr. The waiting room was PACKED an soooo hot. I was about to plug in the AC and crank it lol. We finally get called in to see him and he is in a mood. A bit upset that we were late (second time in a row seeing him lmao). I tell him about the ck levels and about seeing the new pead tomorrow. He was pissed that we were going to see her and wanted numbers (ck level numbers). I have no clue. They did not tell us and I did not ask. So he gets on the phone with our family Dr and demands they send these tests over ASAP. While we are waiting on those he says he can send us to the specialist we need to see (a Dr that is trained to deal with muscle disease ext) and he wants to repeat the CK levels (ck test #4),CBC,and fish test on Chromosome 22. The spinal xray determined that he does for a fact have a genetic disorder of some sort now we just need to figure out what it is.

I asked about the chiro and he said no way. He does not want anyone touching him at all until we know what is wrong. I am a bit sad about that. I was hoping that we can get some natural ways of dealing with the pain. Oh and about pain. Our oh so loving neuro said he has NO record of the "pain" he is in all the time (i guess I never told him about that part......YA RIGHT) what do you think we have been telling you about for the last 18 months...........

On a good note he was VERY impressed with all the gains he has made since we started seeing him when Dawson was 11 months old. He was pretty impressed with the speech gains also. He has improved in the last 2 months since seeing him last. He does think we should still see a S/T for a consult over the stuttering though.

Oh and 1 more thing... The blood test for MPS was NEG.....YAY. We are very happy about this and are glad to close that chapter and move on to another.