Just a recap

I am going to recap the last few weeks.

I took Dawson to our new family dr in march and explained ALL that has been going on. Joint pain,fevers ext. He asked us to bring him in for blood work. We took him in the next morning. A week later we got a call that his CK levels were high and we needed to take him in for another CK test. While we were waiting on results from the second CK test we got a call from Dr.Prasad (his neuro) explaining that his urine MPS test was neg again and his spinal xray is abnormal (at the C2 vertebrae). The mps blood test will take a few months but he is pretty sure it will also be neg. As to what is wrong with the C2 he did not say but we have an appt April 17 so we will know more then.

6 days later we got a call from the RN at our family dr's office that his CK levels (joint) and CK heart levels are high and we need to see the pead. I asked her if we needed to keep our appt with Dr.Hofer (family dr) and she said yes since he wanted to re-measure him ext.

Our appt with Dr.Hofer was on wed April 2. He did a full work up on him and re-measured him and weighed him (2 year check up 6 months late lol). He told us that he has already had a meeting with the pead regarding our mystery boy and WILL have another as soon as she sees him. He promised me that he will get to the bottom of his troubles:) He seen all the issues that we are concerned about (movement ext) and took a full history (more indepth than before). As for the CK levels he explained it as "an athlete with a deep tissue injery" is what his levels look like (whatever that means lol) if they were a bit higher he would be a LOT more cocerned (so I thake this as a good thing).

We decided to take him to a chiropractor to see if maybe they could help him out. Our appt was on thursday. I was a bit leary on this since we are not sure what is wrong with his spine so I did not want them ajusting him that day. Just kind of a meet and greet with explaining his backround and seeing if there is a way we can treat some of his pain without medication. This guys was an angel in a Dr.'s coat:) I did not even have to express any concern at all. He was just as concerned and told us he would NOT put a hand on our son until he sees the xrays himself. He did do a neurological exam on him and lightly felt his neck. He said he could feel the abnormality just running his hand over the C2. He checked his feet and legs to make sure that they were all good (nothing wrong to cause pain). He also noticed the strange way Dawson moves (almost like he is stuck in slow motion). Once we get the ok from our neuro and a copy of all tests than he will try some stuff out. He is pretty sure he can help some of the pain and BALANCE issues:) I will be so glad to see my little man pain free and not covered head to toe in bruses from falling all the time.

So now we wait for next weeks appts and hopefully we will have a few more answers to all these abnormal tests we have had. It will be a busy week for sure. P/T and O/T on tues,wed back to sick kids for our neuro appt and thurs is the pead appt. This thurs we need to go back to our local hospital for yet another CK level test. The pead wants a "fresh" test to go on.

Poor guy has been through enough the last few weeks. You would NEVER know and he does great with the blood tests. Dones not even cry.